WATKINS GLEN, N.Y. (WETM) – Six-year-old Liam Hickey is one in one million, so it is just becoming he had a particular expertise at Watkins Glen Worldwide. The Hickey household from Van Etten has been by means of some difficult occasions.
Their son was recognized with a uncommon skeletal illness and has undergone a number of surgical procedures at Upstate Golisano’s Kids’s Hospital in Syracuse.
“Liam was recognized with a uncommon type of skeletal dysplasia. It’s referred to as Opsismodysplasia. It’s a one in 10 million situation and no one is aware of what to do for us. We’re type of simply paving the best way as we go,” stated Amanda Hickey, Liam’s mother.
Solely two individuals in america have this illness. After their Make-A-Want was granted, this household is trying to pay it ahead. By means of Make-A-Want, the Hickey Household traveled to Disney World, essentially the most magical place on earth. They began their very own charity, Crew Liam: One in a Million, to encourage and lift consciousness for youths like Liam, that suffer from uncommon illnesses.
“We’ve teamed up with Make-A-Want and Watkins Glen Worldwide as ambassadors to assist elevate consciousness domestically. We’re simply making an attempt to fundraise in any approach we are able to,” she stated. “We’ve additionally been nominated as Want Heroes.”
As a pacesetter for youths like him and thru his group, Liam will be capable to present different youngsters with cool experiences. At Watkins Glen Worldwide, Liam received to steer laps because the tempo automotive throughout opening weekend.
“All of the occasions for a very enjoyable time we all the time get to fulfill a number of wonderful individuals. We’re simply excited to get on that racetrack,” Liam’s dad, Steven Hickey stated.
“I’m happening that racetrack!” Liam added.
For Watkins Glen Worldwide President Michael Printup, he’s grateful to attach with native households and the group.
“It’s a privilege for me personally and professionally, when you’ve got an occasion like this and Liam’s household come out popping out to have some enjoyable!” Printup added.
How briskly did Liam drive?
“Twelve miles per hour!” he exclaimed.
Amid the COVID-19 pandemic, Make-A-Want has not granted in particular person needs, so the youngsters and households are getting inventive.
“Proper now, youngsters are reimagining needs. We’re giving puppies, yard experiences, room makeovers,” Donna Auria, regional improvement director for Make-A-Want, stated.
The household is grateful to advertise and share their story to encourage different to enact change.
“Thanks Watkins Glen Worldwide!” Liam concluded.